CCALS’ heart-centered approach is often revolutionary for people navigating an ALS diagnosis. Charles Edens is one of our families who talks about how CCALS’ focus on listening to an individual’s unique story transforms the ALS journey.
In 2023, Charles was diagnosed with ALS. As life changed rapidly for Charles and his wife, Donna, a social worker recommended reaching out to CCALS to receive support.
“The people I spoke to at CCALS were just wonderful,” Charles says. “They listened to me. What CCALS did differently from any other place we worked with was that they said, ‘What can we help you with?’ and ‘Let’s go through your story and find out what you need.’”
Because of this compassionate approach, CCALS provided assistance that changed the journey for Charles. “It was the things I didn’t know I needed that have been lifesavers.” A lightweight wheelchair, a bed handrail, a transfer sling so Donna can assist him, and a specialized formulation of hemp oil to improve sleep were among the list of items that have changed his experience.
CCALS also introduced Charles to voice banking, ensuring he could still communicate with loved ones as his speech declined.
“It is remarkable how much an AI-generated voice can sound like your own,” Charles explains.
CCALS’ full array of services, paired with our belief that every person and their journey with ALS is unique, means that CCALS provides support that people actually need.
Through tears, Charles expressed his gratitude. “I know I am on a short runway, but I couldn’t be more grateful. Angels are real people who offer you something and don’t want anything in return. Miracles are things that happen unexpectedly. You guys [CCALS] have offered me both.” | 
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