Cultivating Compassion Education Series July Gatherings

 

Don't miss our featured speakers for July! Genetic ALS: Embracing Preparation for Potential Futures presented by Jean Swidler, founder of End the Legacy, and Cassandra Haddad, CRNP, vice chair Sunday, July 19, 2026 1:00 p.m. ET Genetic ALS and FTD: End the Legacy, is a non-profit foundation created by and for families impacted by inherited ALS and FTD (FrontoTemporal Dementia). The founders believed there was something missing for this group within the ALS community. They wanted to create a place for people going through genetic ALS and FTD to connect and be united in their common ground. Since the founding of End the Legacy, the organization has partnered with academic experts to create Clinical Guidance for at-risk monitoring of disease onset in their families. They have also created spaces to connect, and encouraged the genetic community to take a full seat at the table as a subset of those impacted by these terrible diseases. Co-Founder and Executive Director Jean Swidler will tell her family's story and why she started End the Legacy. Vice Chair Cassandra Haddad, CRNP will share about the growing consensus for at-risk medical monitoring in the context of inherited ALS.  Register About the Speakers Jean Swidler’s mother, grandmother, great grandfather, aunt and uncle died of ALS caused by the C9orf72 expansion and she is at risk for the same fate. With others she formed Genetic ALS and FTD: End the Legacy and is its current Executive Director.  Cassandra Haddad witnessed her mother, uncle and grandfather die of Sod1 ALS and dedicated her career to helping others as a Nurse Practitioner. She has pioneered efforts to bring medical care to the at-risk community and leads a network of clinical sites offering an approach to care called the Genesis Network as part of her work with Temple Neurology and End the Legacy.  Monthly Gatherings Men of ALS Guided by Ron Hoffman, CCALS Founder July 16 2:00pm ET Join us for a time of brotherhood and belonging for men living with ALS, or men caring for someone with the disease. This group operates as a council circle that encourages deep listening, acceptance, and an invitation to be genuine about what is going on in your life. Register Women of ALS July 16, 3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS journey. The Women of ALS gatherings create a safe space to explore the rich feminine perspective on lineage, sexuality, the role as caregiver, and the experience of compassion. Register Mothers of ALS July 27, 1:00pm ET CCALS offers this informal gathering specifically for mothers who have a child living with ALS. This disease shines a unique and challenging spotlight on the relationships between mothers and their children. We will join with each other in council to listen deeply and bear witness to our experiences as we connect and discover new pathways through the intensity of an ALS experience. Register Contact James@ccals.org with any questions. Share This Email Share This Email Share This Email Tax ID # 04-3567819 Compassionate Care ALS | PO Box 1052 | West Falmouth, MA 02574 US Unsubscribe | Update Profile | Constant Contact Data Notice